Sydnie
Age 11
The Medical Center
Schwachman-Diamond Syndrome
Sydnie’s medical diagnosis may contain the phrase “failure to thrive,” but it certainly doesn’t apply to her lifestyle. Shwachman-Diamond syndrome occurs in about one of every 50,000 births and affects many parts of the body — particularly the pancreas, bone marrow and skeletal system, causing vitamin deficiency and malabsorption.
Sydnie receives nutrients and infection-fighting medical treatments once every six weeks. Despite how tiring and unpleasant these all-day treatments are, family, friends and staff all comment that Sydnie “has a spirit like no other” and never complains.
Six years after her diagnosis, Sydnie is now enjoying school, especially art class. She is a fourth grade straight-A student and has received numerous academic awards. She loves cooking with her mom, playing with her dogs and doing arts and crafts. Her determination will no doubt allow her to achieve her goals, namely to ride a bike without training wheels and to swim like a champ.
Wednesday, April 25, 2012
Children's Miracle Network Hospitals Champions
Champions is a Children's Miracle Network
Hospitals program that brings attention to the important work being done at its
170 children’s hospitals. It does this by honoring 54 remarkable kids who have
faced severe medical challenges, and helping them tell their stories.
The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the 17 million children treated at Children’s Miracle Network Hospitals every year. The 2012 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.
The Champions travel for a week in September, first to Washington, D.C., where they traditionally meet with their state representatives on Capitol Hill and visit the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. While there, Champions meet Children’s Miracle Network Hospitals corporate partners, hospital representatives and media partners. These groups convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.
The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the 17 million children treated at Children’s Miracle Network Hospitals every year. The 2012 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.
The Champions travel for a week in September, first to Washington, D.C., where they traditionally meet with their state representatives on Capitol Hill and visit the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. While there, Champions meet Children’s Miracle Network Hospitals corporate partners, hospital representatives and media partners. These groups convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.
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